Wesley’s Warriors was founded shortly after the passing of our four-year-old son, Wesley. Wesley endured a 17 month battle with Diffuse Intrinsic Pontine Glioma, (DIPG), a terminal pediatric brain cancer. DIPG occurs almost exclusively in children; very few survive past two years of diagnosis. During his battle, Wesley braved countless needles, three rounds of radiation therapy, experimental chemotherapy trials, and multiple hospital stays.
The disease affects the pons; a part of the brain that controls almost all motor function. As the disease progresses, it robs the child of the ability to walk, speak, and, eventually, to swallow and breathe. All of this occurs while the rest of the child’s brain is fully functional. This means that Wesley was still fully aware and present as his own body betrayed itself. With your support you become one of Wesley’s Warriors.
The mission of Wesley’s Warriors (registered 501(c)3) is to help families new to the DIPG community navigate their impossible reality through love and financial support, while spreading awareness of this horrific disease and to raise research funds. We will strive to make this diagnosis no longer a death sentence.
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